Funding Debate in Parliament

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Glad to hear @HouseofCommons is addressing #BrainTumourDebate. The tragic fate of #SkyeHall @BlueSkyeThink can't be allowed to repeat itself

The first ever Select Petitions Committee Report on the chosen topic of Brain Tumour Research, resulted in a packed public gallery and over 60 MPs debating in Parliament yesterday.
The overwhelming message was that the number of life years lost to Brain Tumours are greater than any other cancer, yet the funding is pitifully low. Ministers were humbled and shocked at the enlightening information they gathered in preparation for this debate and that Brain Tumour Research is now well and truly in the public eye.

We met some parents today, all with desperate stories and we wish you all much love and strength. With the incidence of brain tumours on the rise, MPs Guy Opperman, Ian Stewart and Nicola Blackwood brought a fantastic level of clarity and understanding for the way forward for a despicable Cancer which claims more lives of children and young adults than any other. I am absolutely sure they will they continue to support us so that our children do not die in vain as we strive for better survival rates and a better quality of life post treatment.

For the full 3 hour Debate: http://parliamentlive.tv/…/3211c3a4-ea0c-425e-8277-43c7a512…

It has taken brain tumour charities almost 15 years to reach this point. Let's not waste it now! If you know someone who has been affected by a brain tumour please ask your local MP to sign the EDM 1082 http://www.parliament.uk/edm/2015-16/1082. We are not asking for the world, just that the distribution of cancer funding is apportioned appropriately.

Skye died due to side effects which were not able to be shared among paediatric consultants quickly and efficiently due to NO DATA COLLECTION SYSTEM for standard treatment protocols in this country. He had the most common of all brain tumours. This is fundamental and must be addressed to prevent future deaths. We are supporting the Children's Cancer and Leukaemia Group (CCLG) in implementing a data collection system but they will be requiring long term funding which should should come from Public Health England not from small charities struggling to make a difference. We will still play our part and fundraise but we need to be met half way by the current Government.

To watch the Petitions Committee discuss the initial report in Westminster on Monday 14 March, please follow the link to the Parliamentary TV coverage.

For a short extract by David Cameron's comments in Parliament prior to Monday's debate Click Here

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