Blue Skye Thinking working with The CCLG to enforce data collection for children's cancer treatment

We are delighted to announce that we had a very successful meeting with Mr Ashley Gamble, the Executive Director and Dr James Nicholson, the Chairman of the Children's Cancer and Leukaemia Group (CCLG).

Thus far, we have discussed what happened to Skye and the deeply concerning matter surrounding the non-existent data collection for children with cancer receiving standard treatment protocols with:

Prime Minister David Cameron

Local MP Nicola Blackwood

Secretary of State for Health, Jeremy Hunt

NHS Medical Director, Sir Bruce Keogh

Clinical Lead, National Cancer Intelligence Network (NCIN), Dr Michael Peake

Senior Coroner for Oxford, Mr D M Salter

We are determined to move this from a unanimously agreed concept, to a tangible, fully functioning system. Because of huge public support, we have the attention and the momentum to actually change a situation which the Paediatric Oncology community have been crying out for, for some years now. Skye's tragic death is a perfect example of how it is wholly unacceptable to be treating children for cancer with no formalised data collection structure in place. We are incredibly hopeful to be moving this simply unbelievable situation in the right direction.